Friday, May 15, 2009

Yet Another Dose of Avonex

I take Avonex to help slow down the progression of my MS and Friday is shot night. I spend the entire day dreading that shot and thinking to myself that this week will be different. I will not cry, I will not allow the shot to conquer me. I will conquer the shot. Of course tonight went as all the others and I was terrified as usual. I started the entire process an hour ago and I just successfully gave myself the shot after what I call a whole lot of blood, sweat and tears. I envy all those who have a good friend, a caretaker, a spouse or a boyfriend to help them through shot night and all other things MS related. If I ever get one, I will surely not take the person for granted.

Well, I wanted to tell you all about my first night at MS Exercise, but I am pretty worn out now that I have cried for an hour so until tomorrow....xoxo

Wednesday, May 6, 2009

The Beginning of a New Way of Life

On July 3, 2009, I was diagnosed with Multiple Sclerosis at the Georgetown University Hospital. It was my third opinion and I remember being disappointed that I was being told by yet another doctor that I was going to live like this for the rest of my life. I was sent home to decide which treatments I would like to start to attempt to manage and slow down the progression. Although I had been going from doctor to doctor seeking an answer to many questions about my ailments for several months, I was not ready for the finality of the answer that I received on that day. I was brave while I was in the hospital and I made it all the way home before I cried.

Since that day in July, I have learned a whole lot about myself, the people I thought were my friends and about life in general. This blog is going to be about all those lessons learned and more. My life has been challenging at best, but I still feel truly blessed to have lived such an amazing life. I defied all kinds of odds as a teenager and I am defying them even now. I am the strongest person I know and I know a lot of people...lol. I don't have a lot of friends, but I know a lot of people.

Multiple Sclerosis is a chronic, unpredictable neurological disease that affects the central nervous system. The symptoms are different in every individual, so no one person's MS is the same. My symptoms began as dizziness, numbness in the feet and hands, and stiffness in the legs. I had my first MS episode on February 8, 2008 at 1:30 in the morning. For the next five months, I had vertigo 24 hours a day. I still experience a lot of problems with vertigo even now and I believe this is the one symptom that I will never be able to fully control.

As I go through my journey with this disease, I am hoping that my blog tales will be a help to someone who has it or is caring for someone who has it.

Many blessings and until tomorrow....

AJ